Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.

Worthlessness

Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community

Coffee Talk with Kevin and Jen (Chat #7)

Jen and Kevin talk about hope, testing and other topics

Coffee Talk with Kevin and Jen (Chat #6)

Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25

Coffee Talk with Jen and Kevin (Chat #5)

Kevin talks about memories of his wife Sheila and how it's important to nurture friendships

Kevin speaks about memories and nurturing relationships

Jen gets an unexpected call and discussion ensues.

Coffee Talk with Jen and Kevin (Chat 4)

Jen and Kevin chat about disappointments over the years in the Huntington's Disease community

Coffee Talk with Jen and Kevin (Chat #3)

Jen and Kevin chat about the death of a loved one and strategies leading up to and after death.

Coffee Talk with Jen and Kevin (Chat #2)

Kevin and Jen kick off a series of coffee talks concerning Huntington's Disease

Coffee Talk with Jen and Kevin (Chat 1)

James speaks about the Project Change and an array of topics

James Valvano and what's next for WeHaveAFace

Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease. To watch this episode with video, please go to https://www.youtube.com/watch?v=ZJs8EHEPMag

Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease

Louise Vetter (President and CEO of HDSA) underscores her support for the initiative to change the current diagnostic criteria and introduces the new Huntington's disease support platform - #PatientsLikeMe

Louise Vetter concerning support for changes to the current diagnostic criteria for Huntington's Disease

Erin speaks with Kevin about her 5 1/2 year struggle with fertility amidst having a diagnosis of HD

Erin Paterson speaks about having Huntington's Disease and starting a family

Kevin Jess speaks about his wife Sheila, how they met up until her recent passing.

Kevin Jess speaks candidly about the recent death of his wife Sheila

Please listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-year waiting period for Medicare and SSDI! We must communicate the dire need of these medical supports and services to the US Congress!

WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!

#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month!  Our incredible special guest is John Howard!  John recites his powerful poetry!  #iHeartRadio #LetsTalkAboutHD #YouAreLoved

WeHaveAVoice Radio - HD Warrior, John Howard Poetry!

On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act!  ALS just recently made drastic changes to the description of what ALS is.  They furthered their efforts by having unanimous consent by Congress to pass their bill for patients to obtain immediate access to benefits.  The HDSA wishes to have the HD Parity Act pass by unanimous consent by Congress for individuals with Huntington's disease to receive the same benefits as our friends with ALS.  Act today! - Join the HD Acvocacy Act: https://cqrcengage.com/hdsa/Caucus

WeHaveAFace PSA - HDSA: HD Parity Act with Jennifer Simpson!

Kas Rodriguez talks about her experience with JHD in regards to her 8 year old son Daniel.

WeHaveAVoice

WeHaveAVoice

Get Started

Download the App